A rainbow to admire while eating lunch ! Now back to work full time, so 7.5 hours a day approximately. Woodside are pretty flexible, so I suspect some of those hours will be done at home on the sofa. It's a pretty major milestone, happy to be here but I'll need to monitor my energy … Continue reading A rainbow at work →

As I wait in the cheerful queue to vote for our new government, dogs and kids around, listening to a mum explaining pretty well the main parties and what they stand for to her kid, we were offered a muffin by a boy from the school for a $ or so as a fundraiser for … Continue reading Election Day in Australia →

A quick post, something came up in my Facebook feed that really resonates. It's very easy to feed obligated to meet expectations, whether reasonable and achievable or not. Some people are far more instinctively directed to pleasing others, and find it so difficult to push back. I love that meme. I spent too long at … Continue reading Taking time →

After a lovely weekend of kayaking, dinners with friends, dinner with family, enjoying the garden, today has been spent on the sofa sleeping more than I believed I could. The analogy I used a number of times, about climbing a mountain with the AHSCT being the summit, then a long journey down the mountain with … Continue reading Onwards & upwards, with a few detours →

They shall grow not old, as we that are left grow old:Age shall not weary them, nor the years condemn.At the going down of the sun and in the morning,We will remember them.Laurence Binyon, Ode of Remembrance An early start on the 25th of April for Anzac Day, and the dawn service. It’s a beautiful … Continue reading Anzac Day & Fairbridge →

The MSGym founder, who fronts all of their videos, talks about ‘the neural edge’. It’s the point at which an MS person just can’t process any more,  and has to retreat to their safe place. That might be home, it may be bed, sleep … whatever it takes, for as long as it takes to … Continue reading The neural edge & spoons →

Six months seems like a milestone. Six months since my stem cell transfusion, six months where I feel that I have a future. The treatment stops progression, and the ongoing improvements I am seeing are an incredible bonus. Sitting on the plane coming back from Melbourne, I started considering the next 6 months and what … Continue reading The last 6 months, the next 6 months →

I am sitting on the plane, blissfully upgraded to business class with frequent flier points, flying back to Perth after a weekend in Melbourne. Well, I’m drafting this blog post but will upload it when I get home as this plane isn’t wifi enabled. There was an immediate flash of annoyance then I reminded myself … Continue reading Melbourne & Escher →

Just a quick update; my blood results are back and they are slightly lower, after going back up. If you haven't been following the progress, here's a summary; September 18, due to the chemo therapy, they dropped to extremely low white cell counts (WCC)over a few months, they climbed to close to normalin February, they … Continue reading Rhituximab after-effects on blood counts →

Well, its 6 months today since I received my stem cells, back into a body with a dead immune system with the expectation ( but no certainty) that the progression of my MS would be halted, and the hope that I'd see improvements. EDIT; my immune system was heavily suppressed but would have recovered very … Continue reading 6 months today →