The words of Trevor Wicken, who started and runs The MS Gym "- It is OK to grieve the loss of who you once identified yourself to be. - You are not weak, fragile, or defeated for allowing yourself to grieve. - It is really hard to let go of the life you once envisioned … Continue reading Grief & gratitude →

I made a stupid mistake this week. I worked to about 6:30pm on Tuesday, thinking I needed to complete a document for an important meeting at work on Thursday. On Wednesday I was wiped out, so tired I had to go home early. On Thursday the meeting went really well, and would have been fine … Continue reading Fatigue →

I saw this beautiful photograph of Moscow today, which is where I'll be in a very few weeks now. So, to capture where I am with the organisation and planning required ... Application for treatment; I applied for this treatment early June, or maybe end of May, after a very bad weekend. That weekend, my … Continue reading Russia →

A quiet, windy and occasionally sunny Sunday in Fremantle, reminding me why I live in this dry, dusty, far flung big town on the edge of the Pacific, thousands of miles from anywhere. I swam 10 lengths before getting a bit cold, happy with that as I haven't swum for a couple of months. My … Continue reading Fremantle Sunday →

There's been a post lurking in my mind for the last few days, but it was only when a couple of related Facebook posts I put up in my MSGym and AHSCT in Russia sites got good reactions that this post came together. Joy of missing out !? I miss my long hikes and camping … Continue reading Tiny slices of joy →

Keeping a record of my MS issues and the various steps to try to manage them will, I feel, provide a valuable record for me. So the first record is today, when I completed my first MS Gym session and have some clear limitations against which I can measure progression or deterioration. Walking - approximately … Continue reading Symptoms & The MS Gym →