I am so profoundly happy that this is turning into a travel and holiday blog. I remember writing, back when I started this blog once I'd made the decision to go to Moscow for my treatment, that I hoped and prayed that this would morph into a record of travel adventures. While no-one could have … Continue reading Kalbarri & Exmouth – photographs #1 →

Getting on the bus after dropping off my car at the panel shop ( another story to do with wind and doors and other cars ), I realised buses only take cash and SmartRider cards. Neither items were in the handbag I decided to use today, of course. Faced with a long walk home, or … Continue reading Small kindnesses, & a weekend sanctuary →

No, not the type you find in Egypt, training pyramids ! Pyramid training is applicable to pretty much any form of exercise, and is when you increase your level of effort in stages, say by increasing speed, or weight, for say 20 seconds, or 20 repetitions, then decrease the weights or repetitions again. Then you … Continue reading Pyramids →

My sleep has never been great, and in the last few years, it's been terrible. I have recently had it described as 'fragmented', which is a technical term but makes a lot of sense. It describes well my ability to get to sleep easily, but then lie for great periods of time, awake, turning to … Continue reading Sleep issues →

Our first real outing from Perth ! Our restrictions have lifted here, slightly, to allow you to ( distantly) meet up to 20 people, travel within some regions, to go camping, and this week's easing - we can even go out for a meal. Distancing, numbers limited, contact tracing of course, but still it's a … Continue reading First outing from Perth →

Another Anzac Day, after approximately five weeks of restrictions and working from home. It was lovely to see quite a few people standing in their driveways, with a candle or torch, listening to the service on the radio quietly. It's not the same as the dawn service up at Monument Hill or King's Park, where … Continue reading Anzac Day after 5 weeks at home →

I'm sitting here listening to a podcast ( SBS World Radio), and reflecting back on the last three weeks. Three weeks ago today I was wandering around Fremantle with my aunt, sitting down for a coffee and a snack, browsing the markets and chatting with the stall holders about how quiet it all was. The … Continue reading Three weeks of increasing restrictions →

Isolation again ! Well, we are not in lockdown here in Australia, yet, but I am working from home and largely self-isolating due my still slightly impaired immune system. I am finding the isolation rather peaceful if I am honest, as I avoid the everyday commute and am still working from home. I think, having … Continue reading Coronavirus & MS & AHSCT →

So ... I just checked this site and realised just how long it's been since I posted. This summer has been hard, hot and very humid for WA, and this has really drained both my energy and my strength. With resuming working 4 days a week, hot weather and various visitors, any type of creative … Continue reading Back to writing →

I've been discussing AHSCT and recovery with a lot of people in the last few days, probably because we have a long weekend here in Australia and I'm being a social butterfly with various different groups. I'll try to be as general as possible, but everything I state is coloured by my experiences of AHSCT, … Continue reading HSCT & recovery; a reality check →