We can all chose the narrative by which we live. Quoting the words of a fellow MS Gym person and veteran of AHSCT ... As adults we have to face the consequences of our actions. We may be able to delay them but we can’t escape them.Think about the concepts of:Cause & Effect (If I … Continue reading Choosing a narrative →

This blog is slowly turning into more of a travel blog, which was always my hope and intention when I started writing it. Travel has always been a passion, and one of the reasons I work is to save the money to, well, not work and see other places, cultures, cities, scenery. I had feared … Continue reading More a travel blog →

A peaceful weekend of walking, breakfast in Fremantle, watching the Dockers win which is always a welcome surprise, and peaceful time at home. My walking is definitely improving. That day included a 4.6km return walk along South Beach and while it took me a long time with lots of breaks, I finished it with reasonably … Continue reading Success & a peaceful weekend →

A rainbow to admire while eating lunch ! Now back to work full time, so 7.5 hours a day approximately. Woodside are pretty flexible, so I suspect some of those hours will be done at home on the sofa. It's a pretty major milestone, happy to be here but I'll need to monitor my energy … Continue reading A rainbow at work →

As I wait in the cheerful queue to vote for our new government, dogs and kids around, listening to a mum explaining pretty well the main parties and what they stand for to her kid, we were offered a muffin by a boy from the school for a $ or so as a fundraiser for … Continue reading Election Day in Australia →

A quick post, something came up in my Facebook feed that really resonates. It's very easy to feed obligated to meet expectations, whether reasonable and achievable or not. Some people are far more instinctively directed to pleasing others, and find it so difficult to push back. I love that meme. I spent too long at … Continue reading Taking time →

After a lovely weekend of kayaking, dinners with friends, dinner with family, enjoying the garden, today has been spent on the sofa sleeping more than I believed I could. The analogy I used a number of times, about climbing a mountain with the AHSCT being the summit, then a long journey down the mountain with … Continue reading Onwards & upwards, with a few detours →

They shall grow not old, as we that are left grow old:Age shall not weary them, nor the years condemn.At the going down of the sun and in the morning,We will remember them.Laurence Binyon, Ode of Remembrance An early start on the 25th of April for Anzac Day, and the dawn service. It’s a beautiful … Continue reading Anzac Day & Fairbridge →

The MSGym founder, who fronts all of their videos, talks about ‘the neural edge’. It’s the point at which an MS person just can’t process any more,  and has to retreat to their safe place. That might be home, it may be bed, sleep … whatever it takes, for as long as it takes to … Continue reading The neural edge & spoons →

Six months seems like a milestone. Six months since my stem cell transfusion, six months where I feel that I have a future. The treatment stops progression, and the ongoing improvements I am seeing are an incredible bonus. Sitting on the plane coming back from Melbourne, I started considering the next 6 months and what … Continue reading The last 6 months, the next 6 months →