I have a love and hate relationship with social media. I hate the intrusion into everyday life, and as anyone who has had dinner here knows, looking at mobile phones while at the dinner table I find incredibly rude. Basically it's saying to me that Facebook, or your texts, or Twitter, is more important to … Continue reading Social media →

Four years ago, I walked the Camino, 1000 km approximate from the French-Spanish border to the western most point of Spain. This was one of the most amazing experiences and journeys for me, challenging and exciting, peaceful and companionable, through Spanish villages, rolling countryside and along medieval paths trodden for centuries. For vastly more detail, … Continue reading Camino de Santiago 2014 →

Here in my eager hands, while eating breakfast at a local cafe, filling in Andy's forms to send his passport off. One step closer !

Delicious food nourishes not only the body, but the soul as well. This is my current favourite shop, I am generally not much of a shopper and hate shopping centres, however when it's for food, it's all different ! I love browsing, and finding, cool food shops with unusual ingredients. Food is a necessity, we … Continue reading Food →

The words of Trevor Wicken, who started and runs The MS Gym "- It is OK to grieve the loss of who you once identified yourself to be. - You are not weak, fragile, or defeated for allowing yourself to grieve. - It is really hard to let go of the life you once envisioned … Continue reading Grief & gratitude →

I made a stupid mistake this week. I worked to about 6:30pm on Tuesday, thinking I needed to complete a document for an important meeting at work on Thursday. On Wednesday I was wiped out, so tired I had to go home early. On Thursday the meeting went really well, and would have been fine … Continue reading Fatigue →

I saw this beautiful photograph of Moscow today, which is where I'll be in a very few weeks now. So, to capture where I am with the organisation and planning required ... Application for treatment; I applied for this treatment early June, or maybe end of May, after a very bad weekend. That weekend, my … Continue reading Russia →

A quiet, windy and occasionally sunny Sunday in Fremantle, reminding me why I live in this dry, dusty, far flung big town on the edge of the Pacific, thousands of miles from anywhere. I swam 10 lengths before getting a bit cold, happy with that as I haven't swum for a couple of months. My … Continue reading Fremantle Sunday →

There's been a post lurking in my mind for the last few days, but it was only when a couple of related Facebook posts I put up in my MSGym and AHSCT in Russia sites got good reactions that this post came together. Joy of missing out !? I miss my long hikes and camping … Continue reading Tiny slices of joy →

Keeping a record of my MS issues and the various steps to try to manage them will, I feel, provide a valuable record for me. So the first record is today, when I completed my first MS Gym session and have some clear limitations against which I can measure progression or deterioration. Walking - approximately … Continue reading Symptoms & The MS Gym →